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Improving Access to and Confidentiality of Research Data
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The workshop summarized in this report was convened by the Commit- tee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. The primary sponsor of the workshop was the National Institute on Aging (NIA), but additional funding was received from the Agency for Health Care Policy and Research; the Bureau of Labor Statistics; the National Library of Medicine; the Office of Research and Statistics, Social Security Administration; and the Office of the Assistant Secretary for Planning and Evaluation, U.S. Department of Health and Human Services. Sponsors voiced a common desire to develop research programs aimed at quantitatively as- sessing the risks of reidentification in surveys linked to administrative data. Sponsors also stressed the importance of demonstrating and weighing the value of linked data to research and policy. Prior to the CNSTAT workshop, NIA funded a preworkshop conference, organized through the University of Michigan, to illustrate this value—particularly as it applies to research on aging issues. The workshop was designed to advance the dialogue necessary for federal agencies to make sound decisions about how and to whom to release data, and in what cases to allow linkage to administrative records. Sponsors were interested in improving communication among communities with divergent interests, as well as the decision-making frameworks for guiding data release procedures.
0-309-51381-2,
NONE
Management
English
2000
1-75
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